Sept. 9th

I was thinking of writing quick summaries of what has gone on in the last 10 visits with specialists (neurologist, genetics, surgeon, Shriner’s, physical therapy, etc) but have realized I would always be playing catch up so instead I copied and pasted an email I sent to Amy Fish. Amy thanks for helping me realize that I needed to keep this short and sweet.

Things are finally looking up. I love Merlin, his nano water and Dr. Jim Kaiser who has all the best answers. The nano water has been what I attribute to her weight gain and looking so healthy. We are off seizure meds, teething, and finally having a chance to be semi normal. She has casts on her legs up to her knees to help the tendons around her ankles stretch and has caught some really bad stomach flu. She has given us a few scares where doctors have given us worst possible scenarios and I have sadly taken the bait. I am learning a lot and there has definitely been growth in my understanding of the medical field. Although I am glad it exists I know it does not always give you the best solution.
I am looking forward to next summer and Adi being able to play with all the kids. My hope is that she will quickly catch up to other kids her age now that she will not be in the hospital all the time.

I can not thank everyone enough for your love and support during this time. When I look at the stack of bills and just start making lists of all I have to do I sometimes freak out. I can feel the strength of your prayers as I find the patience to deal with issue after issue with the insurance companies. The dumbest thing I have done is get a secondary insurance policy. The headache it has caused is beyond anything I’d ever wish on my worst enemy.