Feb 26th – After being urged by the surgeon we needed to have the 2nd dilation done we decided to proceed. There are added risks when a kid has had a respiratory infection so close to dilation. They told us to be prepared for her to have to be hospitalized for several days and she might have to be on a ventilator. Scott, because of work was probably not going to be able to come up with us. I tried acting tough and told him I would be ok. He arranged to take the day off and the next morning was up at 5:30am helping me get everything in the car. I wasn’t feeling so good and when we got to the gasoline station a couple of blocks away morning sickness kicked in. Man was I grateful I didn’t have to drive up by myself after that.
Everything went well. The surgeon was pleasantly surprised that there was no regression since the last dilation. He was amazed at how well she had been eating. I told him that Jan 31 the tube came out and since she had been consuming at least 650 calories a day and drinking enough. She has been off the tube since then.
We got out of the hospital at 11:50am and headed straight to our ultrasound. For some reason I decided not to cancel the appointment. We walked in five minutes early for our appointment. After looking to see if the baby was complete and that there weren’t any abnormalities we found out we are having another GIRL!!!!
March 12th – Scott and I were waiting for John to show up so we could go to the Temple. Scott took Adi out to see the dogs and a few minutes later calls out for me. Adi was coherent but not breathing. Her body was limp and her face blue. It didn’t look like her other seizures in June so we didn’t know what to think. I called the after hours nurse and she told me she could be seen at 7:30pm. Thinking we had to wait an hour and a half just didn’t seem right. I got on the phone with Steph and then Julie to get two pros advice. Julie’s advice is gold to us so we decided to wait and see if she did it again, canceled our appointment and decided to go up to Primary Children’s if we were going to go anywhere.
March 13th – Went to the pediatricians office to have Adi’s oxygen levels checked and to get a doctors opinion. If nothing else it would be recorded in her chart. When we got home Adi was playing under the table and just collapsed, turned blue, and was non responsive for 7 minutes. I called Julie and she told me to rush over to Timp to get her cleared before we went up to Primary. I called Scott and had him meet me there. Luckily I had Angie with me so she drove while I kept trying to wake Adi up. When we got to the hospital Adi woke up and looked great. After a few tests they told up she had a UTI and just as the doc walked back in Adi began having another attack. He called up to her neurologist, Dr Morita and found she had a cancellation at 1:45pm and would see us then. After giving her a little verced to get up to Primary with out anymore attacks. We got up there at 2:15pm and after discussing the incidents with her she said they sounded like seizures and if we wanted could have an EEG that day. Adi had one more seizure where they found the left size was once again the side misfiring.
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