Well I have neglected this site. As many of you know around Thanksgiving Adi got bronchiolitis. Shortly after we found out the opening into her stomach was too tight and the bottom of her esophagus looks like a pocket and is larger than it should be. After meeting with the surgeon a plan was made to have Adi undergo a series of 3 dilations to loosen the opening into her stomach. He also suggested we have doctor O’Gorman, the GI specialist, scope the esophagus down to the intestine to see what she could find and at the same time biopsy the esophagus. There are still so many unknowns we are just hoping to get some answers. After all this is done we will have to go in for one more surgery where they will correct an incisional hernia and possibly put in a g-tube.
Good News-
Adi has started eating 2-3 ounces of food at a time. Yesterday, thanks to Maureen, she ate 4 pieces of an avocado roll for lunch and then fell right to sleep. She has also begun crawling and pulling herself to her knees. She has impressed her therapist and has Scott and I laughing at her new sense of freedom. Side note- Merlin I want you to know that I attribute Adi’s crawling to Jim’s help, how can we ever thank you!?!
Jan 22, 2009
I’d asked Scott to give Adi a blessing last night. I felt like we were making the right decision proceeding with the EGD and dilation but there was a nagging unsettling feeling that she just needed a blessing, and if for nothing else that he bless the surgeon and GI doc through her. When Scott put his hands on Adi’s head I instantly felt peace. In the blessing the following statements were made-
• you will be able to live a fulfilling life
• the faith of those praying for you have sustained you
It is humbling to know how many people pray for our little girl. What a blessing it is to have such a wonderful family and friends who love and support us.
We were up at Primary Children’s at 7am for check-in. She weighs 15 lbs 8 ounces and is 25.6 inches long. At 8:20am, we walked down the hall with the anesthesiologist gave Adi hugs and went to the waiting room to check-in. As we were walking down the hall I couldn’t help but ask, “Scott does it ever get any easier?” He replied, “I don’t think it’s supposed to.” 45 minutes later Dr. Rollin’s was out to let us know their finding.
Adi’s esophagus is in a J shape. It is not tubular and straight like most. The good news is that the scope proved her GI system looks healthy and there weren’t any signs of food allergies. We were given pictures taken by the scope which were crisp and clear. It is amazing what technology can do now a days. Adi came out of the anesthesia just fine and we were able to go home an hour and a half later.
The next dilation is set for Feb 12th.
In Same Day Surgery Room Waiting for Check-in
Being entertained by Dad
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